Nov 11, 2025 | Media, News, YouTube
Join us for a recording of a welcoming and interactive conversation created especially for parents of CHMers. Whether you’re navigating life as a parent of a child or adult with choroideremia, this is a space to connect, share experiences, and support one another...
Nov 5, 2025 | Media, News, YouTube
Have you ever wondered whether a guide dog might be right for you? Join CHMers Bob Hrdy, Mike Martens, and John Trott as they share their personal experiences with guide dogs—from the decision to apply, to training, to daily life with their canine partners. After...
Oct 31, 2025 | Media, News, YouTube
What is patient advocacy and why is it important for the Choroideremia global community? Come join Eric Hartman, the CRF’s director of advocacy, to discuss his role in advancing our foundation’s mission. Overall, patient advocacy bridges gaps between patients,...
Oct 28, 2025 | Media, News, YouTube
Dr. Raj Agrawal, Vice President of Clinical Development at Ray Therapeutics, shares insights into the company’s groundbreaking optogenetic therapies now advancing into clinical trials for retinitis pigmentosa (RP), choroideremia (CHM), Stargardt disease, and...
Oct 28, 2025 | Media, News, YouTube
Marty Reiss shares his personal journey living with choroideremia (CHM), discussing the challenges he’s faced and the people who have supported him along the way. He reflects on how the Choroideremia Research Foundation (CRF) has impacted his life and offers advice...
Oct 28, 2025 | Media, News, YouTube
Mary Porter, JD, Officer at Large on the Choroideremia Research Foundation (CRF) Board of Directors, shares her family’s journey with choroideremia (CHM). A CHM carrier with several family members affected by the condition, Mary reflects on their initial misdiagnosis...
